Sydney

I am heart broken. We went all the way to sydney (because it so far from home...) and we were all too tired after the dr appointment to get any shopping done :/ Most disappointing. It was a very early morning for me, we left at 7 30 and reached the prince of wales hospital at 11:10, 5 minutes before our appointment was scheduled. Naturally, they were running late so we were waiting a little while - but not nearly as long as at home. It was alright though, I just snoozed on a couch trying not to notice how dirty the hospital looked compared to TCH.

I quite liked the Dr- he was informative and upfront and not patronising like so many dr's. He clearly knew his stuff.

He doesn't think High Dose therapy is appropriate this round and should instead be used if the cancer does wind up coming back. This is quite a relief- though of course his opinion isn't the deciding factor it really does sound like it wouldn't be very useful at this point. He thinks surgery is a definite yes, as is radiationtherapy. Surgery would be asap after I finish the fifth round of chemo. Radiationtherapy would be (this i all in his opinion of course) over an extended period of time to really eliminate the bone metastases.

However, because this is much more common in pediatrics, he's going to consult pediatric oncologists in the hospital who have more experience in the treatment (its treated the same way across age groups) and will call us later this week or early next week. This fits well- means we'll have everything he can give us before I go back in for chemo and see my oncologist here. Then I suppose they'll start making a decision as to what they think is the best way to proceed.